Anchoring Vignettes for Privacy (Researchers - Medical Research)


Question (applies to those who have been medical patients at hospitals):

During [your/"Name's"] [most recent] hospital treatment, how much privacy [did you / she / he] have from medical researchers?

Response categories:

  1. Unlimited
  2. A lot
  3. Moderate
  4. Some
  5. None
Vignettes:
  1. [George] is a cancer patient at the university hospital. The hospital maintains a policy of complete separation of research and treatment, and assures him that his file will never be accessed by anyone but his doctor.
  2. [Elaine] is a cancer patient at the university hospital. As a condition of being a patient, she must let data on her recovery be used anonymously in a study of several thousand cancer patients nationwide. Her tests will only be reported as a small part of an average across all patients.
  3. [Tinika] is a cancer patient at the university hospital. As a condition of being a patient, she must release her file to the hospital, to be used as an anonymous case study for the hospital training manual.
  4. [Mark] is a cancer patient at the university hospital. The hospital requires that all patients allow their medical files to be used for research purposes. Any medical researcher may obtain [Mark's] file.

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